About US – NSHG

Our Journey

The National Society of Human Genetics was established on October 8, 2005,
under registration number 2463.

Here are some key details about the society:
Headquarters: The society is based at the National Research Center.
President: Prof. Dr. Amal Mahmoud Mohamed.
General Secretary: Dr. Nermin Ahmed.
Treasurer: Dr. Peter Safwat.

Objectives of the Society :
Scientific, Cultural, and Social Goals:
Raise scientific and cultural awareness among professionals in the field of human genetics.
Disseminate knowledge and scientific information needed for genetic research.
Attract global attention to the efforts of Egyptian scientists in genetic research.
Establish a clear presence on the world map in genetic research.

Awareness and Education:
Conduct seminars and scientific conferences to discuss genetic diseases, their identification, prevention, and treatment.
Encourage ethical research that serves the field of genetics.
Promote distance education and publish a journal for human genetics.
Host international conferences.

Spreading Genetic Awareness:
Utilize media channels to dispel fears surrounding genetic diseases.
Educate the public about effective ways to deal with genetic issues.
Highlight available care centers for patients.
Create simplified booklets with relevant information.

Encouraging Participation:
Encourage students, graduates, and genetics enthusiasts to join the Society .
Foster collaboration among interested Egyptian scientists.
Promote cooperation with various countries, especially Arab and African nations.

Enhancing Diagnosis and Early Intervention:
Improve diagnostic capabilities and early intervention to reduce the spread of genetic diseases.

Family Support and Awareness:
Educate families on the best ways to handle children affected by genetic conditions.
Provide psychological support for affected children and guidance for their families.

Coverage of Treatment Expenses:
Support patients with Osteogenesis imperfecta by covering the costs of treatment.

Our Mission

The mission of the National Society of Human Genetic-Egypt revolves around advancing research, education, and advancement in field of human genetics, all for the benefit of genetic disorders patients.
1. Research Advancement: Promoting and supporting scientific research in human genetics. This may involve organizing conferences and symposiums and facilitating collaborations among researchers.
2. Education and Training: Providing educational resources, training programs, and professional development opportunities for scientists, clinicians, students, and educators interested in human genetics. This could include workshops, siminars and online courses. .
3. Public Awareness and Outreach: Increasing public awareness and understanding of human genetics, its applications, and its implications for health and society. This might involve public lectures, media campaigns, and educational materials.

4. Ethical and Social Implications: Addressing ethical, legal, and social issues related to human genetics research and technology, such as privacy, consent, discrimination, and access to genetic information.
5. Collaboration and Networking: Facilitating collaboration and networking among scientists, patient advocacy groups, and other stakeholders to accelerate progress in human genetics research and its translation into clinical practice and public health interventions.
Overall, Our National Society for Human Genetics aims to advance knowledge, promote best practices, foster collaboration, and advocate policies that ensure the responsible and equitable use of genetic information for the benefit of individuals and society.

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The vision for the activities of a society of National Society of human genetics encompasses a broad range of initiatives aimed at advancing research, education, advocacy, and collaboration in the field.
Organizing conferences, symposiums, and workshops to facilitate collaboration, exchange of ideas, and dissemination of research findings.
Providing educational resources, curriculum development, and training programs for students, scientists, clinicians, and educators interested in human genetics.
Developing online courses, webinars, and educational materials to increase public awareness and understanding of human genetics and its implications for health and society.
Public Awareness and Education: There will be increased public awareness and education about the role of genetics in health and disease. Efforts to promote genetic literacy will empower individuals to make informed decisions about genetic testing, understand their genetic risk factors, and participate in research studies.

Engaging in public outreach campaigns to raise awareness about the importance of genetics in health, disease prevention, and personalized medicine.
Collaborating with patient advocacy groups to ensure that genetic research and healthcare policies are informed by diverse perspectives and community needs.
Developing guidelines, best practices, and ethical frameworks for the responsible conduct of genetic research, clinical practice, and data sharing.
Addressing ethical, legal, and social issues related to genetic testing, genomic data privacy, informed consent, and equity in access to genetic services.
Fostering collaboration and knowledge exchange among researchers, clinicians, and organizations globally to address common challenges and opportunities in human genetics.
By pursuing these activities, our national society of human genetics can contribute to advancing scientific knowledge, improving healthcare outcomes, promoting ethical and equitable practices, and ultimately enhancing the well-being of patients with genetic disorders and their families.

Our Values

The values of our National Society of Human Genetics reflect its commitment to excellence, integrity, collaboration, diversity, and ethical conduct in advancing research, education, and healthcare in the field of human genetics.
Excellence: Pursuing scientific excellence and rigor in research, education, and clinical practice to advance understanding of the genetic basis of human traits, diseases, and variation.
Integrity: Upholding the highest standards of ethical conduct, transparency, and integrity in all aspects of human genetics research, including data collection, analysis, interpretation, and dissemination.
Collaboration: Fostering a culture of collaboration, openness, and teamwork among researchers, clinicians, educators to address complex scientific challenges and societal issues in human genetics.
Diversity and Inclusion: Promoting diversity, equity, and inclusion in all aspects of human genetics research, education, and healthcare, including representation of individuals from diverse backgrounds, perspectives, and populations.

Ethical Conduct: Adhering to ethical principles, guidelines, and regulations governing the responsible conduct of genetic research, clinical practice, and data sharing, while respecting the rights, autonomy, and dignity of individuals and communities.
Education and Engagement: Promoting public awareness, education, and engagement about the importance of genetics in health, disease prevention, and personalized medicine, and empowering individuals to make informed decisions about genetic testing and healthcare.
By upholding these values, our National Society Human Genetics can contribute to advancing scientific knowledge, improving healthcare outcomes, promoting ethical and equitable practices, and enhancing the well-being of individuals and populations.

Our Objectives

Increased awareness about human genetics & genetic diseases among the public & professionals to support and participate in research on genetic diseases in Egypt and attract specialized scientists’ international attention.
We are holding conferences, workshops, symposia, and training courses in the specialized field of human genetics to increase public and professional knowledge about the different genetic diseases and methods for containing them in society and exchange of scientific knowledge.
Enhancement of research projects on genetic diseases, publication of results in a specialized journal to be published by the society.
Increase public awareness about the prevention and management of genetic diseases through the mass media and communications through newspapers, television& radio programs.

Increase public knowledge about the care & rehabilitation of the genetically disabled through leaflets to be distributed to the public.
Encouragement of students and recent graduates to join the activities of the society.
Enhancement of national, regional, and international networking and cooperation for early detection, prevention, and management of genetic diseases that affect all systems and organs of the human body at the level of Egypt, Arab countries, Africa, Europe, USA, etc.